We’ve been asked recently about our fundraising efforts. We’re a standard entry into the Cape Epic raise rather than one of the Charity Entries, but as Tyrrell and I both see completing the event as a big challenge, we thought we’d give set ourselves an added incentive – raising funds for a good cause (much of the information below comes from the CF Trust website).
What is CF?
CF stands for Cystic Fibrosis and is the UK’s most common life-threatening, inherited disease. It affects more than 7,500 babies, children and young adults. Symptoms can include poor weight gain, troublesome coughs, repeated chest infections and salty sweat. Cystic Fibrosis is a genetic disease that affects a number of organs in the body (especially the lungs and pancreas) by clogging them with thick, sticky mucus.
At present there is no cure for CF, but the faulty gene has been identified and doctors and scientists are working to find ways of repairing or replacing it. One of the main objectives of the CF Trust is to fund this work. People with CF are living longer than ever before. Until the 1930s, the life expectancy of a baby with CF was only a few months. Today the average life expectancy for someone with CF is around 31 years.
Where will the money go?
Every year, the Cystic Fibrosis Trust is committed to spending at least £5 million. This money funds medical research, clinical support and family care. All clinical and research projects are scrutinised by an international panel of leading doctors and scientists. This ensures that every pound is distributed to areas of most need and potential scientific impact. Learn more…
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